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Brain Injury

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Additional Information

The primary NIH organization for research on Brain Injury is the National Institute of Neurological Disorders and Stroke (NINDS)


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Family Resources
 
 
Support Groups
  • Find Brain Injury Support Group near You
    Meetup.com
    Meetup is the world's largest network of local groups of all kinds. At Meetup you can locate, sponsor, or start up such a group. In the search boxes enter “brain injury” and your city or ZIP code to bring up a list of support groups within 25 miles. You can then refine the list by distance.
  • Support Groups
    Brain Injury Association of Illinois
    Group listing arranged by cities.

General Resources
  • Coping and Support
    Mayo Clinic
    Provides a list of steps caregivers should take when somebody from family has traumatic brain injury.
  • For Family and Friends
    BrainLine.org
    Web site provides basic information about caring for a loved one with TBI; legal and financial guidance; workplace rights for caregivers; support group information; and advice about caregiver burnout among other topics.
  • Sarah Jane Brain Project
    The Mission of the Sarah Jane Brain Project is to create a model system of care for children and young adults suffering from all Pediatric Acquired Brain Injuries in order to advance our knowledge of the brain fifty years over the next five years!
  • Traumatic Brain Injury
    Caregiver Alliance
    This fact sheet discusses traumatic brain injury (TBI) and its consequences, and provides information about the helpful resources available to families caring for a loved one affected by TBI.

Advocacy & Legislation
  • Advocacy & Government Affairs
    The Brain Injury Association of America (BIAA)
    BIAA is the country’s oldest and largest nationwide brain injury organization that advocates for greater access to care for civilian and military populations.
  • Traumatic Brain Injury Legislation
    National Conference of State Legislatures
    The site provides state laws on traumatic brain injury. Many states and the District of Columbia currently operate a Medicaid Home- and Community-Based Services (HCBS) waiver targeting patients with TBI. HCBS waivers are active in 48 states and the District of, providing funding for cost-effective services to those at risk of being institutionalized due to a medical condition.
  • Living with Traumatic Brain Injury: Legal Issues
    BrainLine.org
    This section includes legal issues faced by people with brain injury. Topics include finding legal help, long-term care, guardianship and power of attorney’ advanced medical directive or will, financial and estate planning, and more.